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Thursday, November 30, 2017

Surviving the holidays with Special Needs

As parents of children with special needs, and some of us even having special needs ourselves or maybe spouses that need a little extra care, the holidays can be especially hard on us. Here are some things to remember this holiday season that will hopefully get you through.

A big part of the holiday season is food. Many of our kids may not be able to eat, may only be able to eat certain things, or may only choose to eat a select few items. When you get together with friends and family, all the food may freak you or your child out. Don't let it get to you. If your child can or will only eat certain things and you don't think those items will be served, make sure to bring them so that your child doesn't get left out. Even if your child is tube fed, have them sit with everyone and be a part of everything. Don't worry about if they do or don't eat and don't let anyone else tell you any different. This season is about being with friends and family. Don't try to force them to eat something they don't want to eat as it could ruin everything.

Lower your expectations of a "perfect holiday" and don't worry if the popular traditions don't fit in with your family, you can start your own. First off, there is no perfect holiday, it is what you make it. It isn't all about decorations and presents it's about spending time with family. That family can be just you and your child or it could be tons of people gathered together.

One of the best things to do is just stay home. Make everyone come to you. Many of our children get so overwhelmed with all the travel and unfamiliar places and for some it is just impossible to travel whether it be so much equipment to take or a child that gets sick too easily to go everywhere. That is ok. If people want to see you for the holidays they can come to you. This allows your child to be in their home where they are comfortable and will be able to go to their room if needed to get away from everything. It also keeps you from having to take all the crazy items most of our kids need. It also allows us to be in charge of any situation that may arise.

If you do have to travel, make sure to pack everything your child needs plus extras. Pack their favorite items. Try to make sure that there is a "safe place' for them where ever you are that they can go to if need be. Give them plenty of time to know where you are going, and don't worry if everything doesn't work out perfectly.

I hope these tips help you guys survive this holiday season.

1 comment:

  1. Thanks for sharing. Over the years, having family come to us was so much easier. My son was comfortable and I didn't feel as if I had to do a lot of work with his behavior. Actually family would help by watching him so that I could eat. Last years his father attending my family Christmas Dinner and helped with Nate. Thanks for your post. Charlene Bullard - https://faithtoraisenate.com

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