Mommy blogger of 4 crazy kiddos.. Reviews, travel ideas, special needs awareness and more. Some posts may contain affiliate links but all reviews are my thoughts.
Thursday, July 6, 2017
Day 3 and Epilepsy
Hello everyone hoping you had a good Thursday. Ours was pretty boring overall. My husband who has epilepsy like both boys hadn't seen a neurologist or been on medicine since he was a child. Well he finally got into a neurologist and din't have the best experience. So this doctor who has never seen my husband before knows no history other than what my husband and I tell him before doing any sorts of tests or anything started him on seizure medicine again but told him as soon as it's legal he will give him the marijuana card. Asked if he worked and told him he shouldn't that he should get on social security. Told him don't drive and then when he told him about his headaches and troubles breathing and swallowing and stuff and the family history of chiari he told him that chiari isn't bad that everyone has some sort of chiari. We are like what is wrong with this guy? Our son didn't have brain surgery at 11 months old because Chiari isn't a big deal. So now we are on the search for a new neurologist for him as well as hopefully a neurosurgeon. We also need to get him in to a sleep dr because he is having some sort of issues breathing, or lack thereof when he is sleeping. He had a really bad episode last night that was very scary. So hopefully we get that figured out soon. Other than that the day was pretty uneventful and boring. In the MyChart mine, Silas and my husbands test say they came back but the full report will be given when Louie's come back I guess since we are just the ones to check after they get all his information.
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