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Tuesday, November 7, 2017

Epilepsy Awareness Month

November is Epilepsy Awareness Month. This month is a big one for me because my husband and both of my sons have Epilepsy. I want to raise a LOT of awareness this year. If you want to know about Epilepsy such as what it is, different types of seizures and more you can read one of my posts all about that:
http://crazymommy89.blogspot.com/2017/07/day-3-and-epilepsy.html
http://crazymommy89.blogspot.com/2014/07/all-about-epilepsy-and-seizures.html

There is so much that can be taught about Epilepsy. No 2 people with Epilepsy are alike. People need to be taught what is a seizure and what isn't and what should and shouldn't be done in the case of a seizure. Did you know that Epilepsy is the 4th most common neurological disease in the nation? In fact, 1 in 26 people will be diagnosed with epilepsy at some point in their lifetime. Sadly many pass away every year from Sudden Unexpected Death in Epilepsy (SUDEP), which is why it is important to try to keep seizures under control and to know proper first aid. 1 in 150 people who have uncontrolled seizures dies from sudden unexpected death in epilepsy.

If you know someone with Epilepsy or other special needs or maybe both here are some resources:
Advice For Special Needs parents just starting their Journey
Things parents of kids with special needs want you to know
Special Needs Awareness


If you want to use social media and help spread awareness use #EpilepsyAwarenessMonth. Also #MyEpilepsyHero invites people impacted by epilepsy to share individuals that made a positive difference in their lives through support or inspiration. These heroes can be a family member, healthcare provider, mentor, or friend. Sunovion will donate $1 to the Epilepsy Foundation for every video or photo posted (publicly) on Facebook and Twitter using the hashtag #MyEpilepsyHero. Please help and spread the word.

There are many ways you can get involved.


Raise Awareness And Speak Out
Speak Up, Speak Out about epilepsy by contacting your representatives in Congress
Read and share the Epilepsy.com newsletter Subscribe Here
Contact the SUDEP Institute to help build awareness about epilepsy mortality and sudden unexpected death in epilepsy
Share Talk About It videos

Participate digitally:
Facebook
Twitter
Instagram
epilepsy.com forums and chat

Awareness Events:
National Epilepsy Awareness Month
International Epilepsy Day

Get Involved And Volunteer
Contact your local Epilepsy Foundation to see what's happening in your community
Join the Community Action Network
Participate in a Clinical Trial

National Events and Initiatives
National Walk for Epilepsy
Lemonade for Livy
Purple Pumpkin Project
Kids Crew

Fundraise To Support The Mission
Make a donation
Host or fundraise for any event
Fundraising Events and Initiatives:
National Walk for Epilepsy
Athletes vs Epilepsy

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