Moebius Syndrome Awareness Day

What is Moebius syndrome?

Moebius syndrome is a neurological disorder. It is non-progressive, which means it does not get worse as time goes on. It usually presents itself as facial paralysis. Some affected individuals also have limb abnormalities, respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, weak upper body strength and autism spectrum disorders. 

What are the symptoms?

• Lack of facial expression; inability to smile
• Feeding, swallowing and choking problems
•  Keeping head back to swallow
•  Eye sensitivity due to inability to squint
• Motor delays due to upper body weakness
• Absence of lateral eye movement
• Absence of blinking
• Strabismus (crossed eyes)
• Drooling
• High palate
• Short or deformed tongue
• Limited movement of tongue
• Submucous cleft palate
• Dental problems
• Hearing impairment
• Articulation / speech disorders
• Minor mid-line anomalies
• Club feet
• Hand/feet deformities

What are the treatment options?

There is no definitive treatment available for Moebius syndrome. All cases are different and it is important to surround yourself with a good medical team, which may include a mix of the following:

Pediatricians

General surgeons

Pediatric dentists

Orthopedic surgeons

Ophthalmologists

Pediatric otolaryngologists

Psychologists

Psychiatrists

Occupational and physical therapists

Audiologists

Speech therapists